‘Reducing Health Inequalities in PEoLC for People with a Learning Disability’ is the second session in our series of Multidisciplinary Palliative and End of Life Care forums. In this video you will hear from the LeDeR (Learning from Lives and Deaths – People with a Learning Disability and Autistic People) team who discuss how palliative and end of life care services can better support those with a learning disability.
People with a learning disability experience significant health inequalities. Their life expectancy is over 20 years lower than the general population, they are twice as likely to die a preventable death, and they are less likely to receive good palliative and end of life care (PEoLC) services. LeDeR undertakes reviews of all the lives and deaths of people with a learning disability, and now people who are autistic but do not have a learning disability. This is to drive quality improvements and to reduce health inequalities. In Sussex, LeDeR has identified that mainstream services need to be more inclusive of those with a learning disability, and this includes PEoLC. Services supporting those with a learning disability also need to improve access to advance care planning.
This workshop aims to increase your understanding in what the barriers are to inclusive PEoLC in order that we can help you overcome them. This includes what reasonable adjustments you may need to legally make.Mary Evans, LeDeR Reviewer – Mary is an experienced general nurse with a background in patient safety and mortality reviewing.
Abby Lonsdale, LeDeR Reviewer – Abby is an experienced social worker and DoLS best interest assessor who has worked in community learning disability teams across health and social care in her career.
Edel Parsons, Senior LeDeR Reviewer – Edel is a learning disability nurse who has worked with people with a learning disability for 26 years across the NHS and social care, in community nursing, safeguarding and now health inequalities.